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Archive for April, 2009

# 63

Wednesday, April 1st, 2009

Brian D. McTear to me

Apr 22, 2009

Hey Bobby!

I hope you are doing alright. Devin tells me you have pancreatitis! Crap! I am having miner problems in my small bowels right now. Nothing like what you have, but I am not eating til it passes, which I imagine you are also doing.

I went in and saw Marianne and Giovanna yesterday. I gave them a pile of CDs for you: all three Bitter bitter weeks albums and the Novenas album. The Novenas is Amy’s band that I also play in. Neither band is super active these days, but the albums, I think at least, are pretty great.

I do hope you are feeling better soon!  I can start to put together our blog today. I have no HTML skills, but I can put together the basic blog through tumblr. You down?

B

# 64

Wednesday, April 1st, 2009

Robert Wolter to Brian

Apr 22, 2009

Hey…!!!

thanks so much for passing on your records, i’ve been listening starting with Peace is Burning Like a River. it’s awesome, i especially like the title track. the novenas rock, too! i really like you guys…

yeah i’ve been dealing with pancreatitis for about a week now. it’s a lot better but still so annoying. don’t you hate not eating?! it drives me crazy. i hope you’re not in too much pain or anything, i’m sorry to hear you’re having probs. i know for me the pain is the most frustrating/difficult aspect. i can remember when i used to rock out like jon bonham on a daily basis, now i’m more on the level of moe tucker (velvet underground). i just follow my dads advice which is adjust, adapt and overcome. i’m pushing dr. h to get me outta here by friday.

dude, kick ass on the tumblr, i am following it now so you can make me an admin whenever. how should we go about posting? i’ll try to work on a look for the site. maybe we should post pics of us (taken from our macs) everytime we post?

just an idea. lets have some fun with this.

# 65

Wednesday, April 1st, 2009

65.

Brian D. McTear to me

Apr 22, 2009

Thanks, Bobby! I am glad you like the records. I hope they help pass the time a bit. I think as far as the blog goes, lets just post some of our emails to start. I like the idea of a new pic each post! That’s cool.

I am really not in that bad of shape. I decided to preemptively “clean house” as over the past couple years I’ve had a tendency to get small bowel obstructions. The first time it happened I think it was around when you first had Pancreatitis, so I actually thought that was what I was experiencing. Turned out to be Small Bowel Obstruction instead. That was terrible.

Recently, then, I had a “near episode”, and then I had some pain and bloating a few days ago after scarfing down a couple slices of pizza  with Devin and Amy during the Weathervane stuff. In 15 minutes I had a mild version of the pain I had before I went into the hospital for it in 2007.

I have learned recently that I have to drink tons of water every day. Well, not tons, just 64 oz. But that’s hard! Needless to say, I didn’t have my water bottle that day.

So I am hardly in a place to complain…that’s my long way of saying that.

I hope you are able to get out by Friday! It’s going to be a nice weekend, supposedly.  Let me know how you are making out, and maybe we can have the site up by next week? That’d be cool!

B

# 66

Wednesday, April 1st, 2009

Robert Wolter to Brian

Apr 23, 2009

it’s crazy how varied Cystic Fibrosis can be. I have all of these problems that from what i can gather very few other people with CF get. they say only 2.9% of people with CF have cepacia. but if you are in that 2.9% there are a lot of similar complications that go along with it. it is such a frustrating disease. i’m hoping some better treatments are developed soon.

i was really hoping to get out of the hospital this week but it doesn’t look like it’s going to happen. dr. h get’s really frustrated with me because he doesn’t believe i will follow through with his treatment plans. i imagine he is like that with most of us. it is like trying to please an uncompromising father. in the end i trust and respect him completely and try my best to make my reality mesh with his expectations.

i’ll fool around with the format of the blog while i’m in here and see if i can come up with anything cool. lets just say i have the time. i’m in a place where i have cabin fever but still get really tired at times, so i’ll try and get it goin’.

alright talk to yas soon…

# 67

Wednesday, April 1st, 2009

Brian D. McTear to me

Apr 23, 2009

It is weird. Do you know your genotype? I don’t know mine, actually. Dr. Haj says my sister and I actually have genotypes that would suggest we’d have pretty rough cases, though we’ve somehow been spared a lot of the crap.  When I was growing up there was a girl that was friends with my older sister that had CF. She had ONLY digestive issues. Strange!

I will say that everyone in that clinic, Marianne, Giovanna, and Dr. H…all of them really really care for you! I can totally tell that. M and G get huge smiles and unmistakable looks of fondness for you. I know it’s frustrating to be stuck in there, and I can see Dr H IS that kind of “tough love” type of guy, but you are in really good hands. You’ll be out soon, you’ll feel better and it’ll be nice weather! Think of it that way if that is at all possible.

No worries if you can’t work on the blog. I will be a little busy for the next week or so, but after that I can at least try to put up our back and forth from earlier this year.

Talk soon!

B